Despite the health care team’s best efforts, it may not be possible to cure your child's cancer. But this does not mean it is untreatable. Children with advanced cancer sometimes live for many months or even years. During this time, treatment focuses on controlling the cancer, when possible, and managing symptoms. This makes it possible for the child to enjoy a high quality of life for as
long as possible. Parents play a crucial role in helping a child continue to live a fulfilling and comfortable life and prepare for a peaceful death. You should talk openly and honestly with your child’s health care team about your family’s feelings, preferences, and concerns. Many team members have special skills, experience, and knowledge to support children with advanced cancer and their families. The
following are special types of medical care to help with symptoms for children with advanced cancer: Palliative care. Palliative care, also known as supportive care, focuses on relieving the side effects of cancer or its treatment. Doctors provide this care at any stage of the disease to maintain the best quality of life possible for patients. Palliative care helps a child with cancer live as comfortably as possible. It also addresses the psychological, social, and
spiritual needs of the child and his or her family. Palliative care is not an alternative to cancer treatment. Children with cancer often receive treatment for the cancer and treatment to ease side effects at the same time. Palliative care is given as early as possible in the cancer treatment process, and it continues throughout the course of the cancer. Learn more about palliative care. Hospice
care. This type of palliative care is provided to patients who are expected to live 6 months or less. In the past, hospice care was only for children who were no longer receiving cancer treatment. But hospice care and cancer treatment can now be given at the same time for children who have limited time to live. Children can also continue receiving palliative care while in hospice care. Hospice services are often focused on giving the support needed for care at home. But both palliative
care and hospice services may be provided in a hospital or in a private care facility. Many families want their children to spend most of their remaining time in the comfort of their own home, surrounded by family, pets, and special belongings. Hospice care enables most children to remain at home for as long as possible. But some children and families are reassured by the hospital environment and find comfort in the close relationships they develop with the hospital staff and other
children. As a result, some families may choose to receive care at the hospital, rather than at home. Talk with your child’s health care team about the setting that feels best to you, your child, and your family. Learn more about hospice care. Talking about death is a difficult step in caring for a child with advanced cancer. Below are a few things to
consider when making this decision: How and when you talk with your child about the subject is a personal decision. This decision is influenced by many factors, including the expected course of your child's cancer and your opinion about what information is appropriate to tell your child. If your child's cancer advances slowly, you may have more time to decide how to approach it. If your child's cancer develops more rapidly, you may choose to talk with your
child right away. You are the best judge of what and when to tell your child. Some parents believe they can protect their child by not telling them the truth. But most children with advanced cancer already know or suspect that they are dying. They may figure this out from watching the adults around them and the changes they experience inside their bodies. Keeping this information from your child does not give him or her the chance to share their worries and ask
questions.
How to talk with your child about deathTalking about death and dying is always difficult. Ask social workers, nurses, child life psychologists, or other specialists for advice about how to talk about death with your child. The following tips may also be helpful:
When discussing death, the following reassurances can be especially helpful for your child:
How to meet your child's needsAlthough parents often feel powerless caring for a child with advanced cancer, you can take steps to help meet your child's psychosocial and physical needs. As your child's cancer progresses, the needs will change. Pay close attention to your child's behavior to adjust to these changing needs. Here are some tips to help your child experience the fullness of childhood for as long as possible:
As your child's cancer progresses and death approaches, he or she will have additional needs. Consider taking these steps during that time:
How to find support for yourselfIt is not natural for parents to outlive their children. Nothing can erase the sadness and distress that parents experience caring for a child with advanced cancer. But there are ways to make you feel less alone. The following suggestions may help you cope:
Learn more about taking care of yourself as a caregiver. Related ResourcesHow a Child Understands Cancer Grieving the Loss of a Child Care Through the Final Days Which of the following best describes the 4 year old concept of death?Preschool Age (2-4)
Preschool children do not comprehend the concept of “forever.” For this age group, death is seen as temporary and reversible.
Which psychosocial developmental skill would the nurse anticipate in a 4 year old child?The answer is B: purpose. Ages 3-5 years include preschoolers, and according to Erickson's Stages of Psychosocial Development the child is in the Initiative vs. Guilt stage. The child is learning how to venture out and be independent.
Which developmental milestone would the nurse expect when assessing a preschooler?Which would the nurse anticipate when assessing a preschool-age child, according to Erikson's developmental stages? The nurse would anticipate that a preschool-age child would have highly imaginative thoughts, according to Erikson.
Which self care skill would the nurse expect a 4 year old child to be capable of performing quizlet?What self-care skill does the nurse expect 4-year-olds to be capable of performing? Four-year-old children can put on a shirt and can fasten it if the buttons are large. Four-year-olds will be able to comb, but not part, their hair.
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